Using technology to put more power in the hands of patients

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Using technology to put more power in the hands of patients
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Calgary-based Zamplo’s connected health platform helps to mobilize personal health data

Shaneel Pathak used to carry a binder brimming with documents, test results, prescription information and other critical data from appointment to appointment with a multitude of health care providers as he and his wife, Heing Taing, navigated their way through her cancer diagnosis.“Many people know that the system is fragmented. You have to repeat your story; it’s difficult to navigate,” says Mr. Pathak, co-founder and chief executive officer of HAnalytics Solutions Inc.

At one point, when the cancer progressed to her spine and brain, she was approved for a new cancer drug but there was no published data on its efficacy, Mr. Pathak recalls.“I went to the community and asked them, can you give me your data?” he says.Seventy-six people responded. He analyzed the drug data and found that most of them had a positive response.

“That paper binder is replaced with a virtual binder,” Mr. Pathak says. “That’s how we are shifting the power to the individual.” The platform will be used by patients taking part in a study of palliative oncology patients recently awarded the Princess Margaret Cancer Foundation Grand Challenges Award for Digital Intelligence, and is one of two companies in the world chosen by the Institute of Electronic Electrical Engineers to pilot new global mobile health data standards.

Zamplo was designed with millions of global users in mind, which could provide invaluable quantities and diversity of data that can be very difficult for researchers to find on their own, Mr. Urquhart adds. There are already users in Canada, the U.S., Australia, Europe and South America. “There can sometimes be no research or information on the disease,” says Aneal Khan, medical geneticist and director of the Metabolics and Genetics in Calgary clinic at the Alberta Children’s Hospital Research Institute at the University of Calgary, and a child health and wellness researcher in the precision medicine and disease mechanisms program.

“This app is an attempt to try to get real-world experience on what patients are actually doing,” says Dr. Khan, who is also an adjunct professor at the University of Calgary’s Cumming School of Medicine. “We hope to be able to see this patient was taking more pain medications. Did it actually help relieve the pain?”

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