Everyone's multiple myeloma journey is different -- which is what makes sharing them so valuable.
treatment journey is different, including mine, but I find sharing experiences to be helpful and comforting. It spurs conversations with doctors about questions and concerns. It's common for myeloma patients to try multiple regimens throughout their journey, and I’m no different. In 23 years, in addition to numerous radiation treatments, I have undergone nine different chemotherapies.When I was first diagnosed in 1997, at 29 years old, I was only offered one type of.
I tried another new drug designed to help with relapsing or recurring multiple myeloma, but it severely affects your corneas and causes excessive dryness and blurriness. I was required to see an eye doctor before each treatment to make sure this side effect would remain reversible. My light chain numbers incredibly dropped from 70 to below 1 within a month . I have experienced some mild nausea, low blood counts, neuropathy, and lack of appetite. I am grateful for mild side effects -- many people have experienced much worse on this regimen.Two things have been consistent throughout my journey: radiation and that very first steroid I received. Multiple myeloma responds well to low-dose radiation, so it has been the first course of treatment every time.
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