Trikafta, a CysticFibrosis drug approved in 2022, works for about 90 per cent of people living with cystic fibrosis and comes with a staggering list price of $300,000. — via healthing_ca CFCanada raredisorders FurtherTogether trikafta CF
ADVERTISEMENTKelly Grover, CEO of Cystic Fibrosis Canada, a national charity, sat down with Healthing to talk about the organization’s advocacy on behalf of patients and their families, as well as advances in treatments and living well with the disease.The organization was started in 1960 to improve the health and well-being of people living with cystic fibrosis.
. When [Health Canada approved] it [in 2022], we lobbied for access across the country, so we had to start at the federal level. Then we had to lobby each province and territory to have it funded.Right now, our focus is to continue to get the drug available for more people so we’re pushing at a provincial level to make it more affordable, because drugs are funded provincially. If we needed federal investment in a rare disease strategy, that’s where we would lobby federally.
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Cystic Fibrosis Canada CEO: 'Our focus is to get Trikafta to more people'Trikafta, a CysticFibrosis drug approved in 2022, works for about 90 per cent of people living with cystic fibrosis and comes with a staggering list price of $300,000. — via healthing_ca CFCanada raredisorders FurtherTogether trikafta CF
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