No treatments for ALS that can stop the progression of this fatal disease.
Dear Dr. Roach: My question is about amyotrophic lateral sclerosis . I have been diagnosed with this horrible, debilitating disease and don’t know where I am headed. I went to a hospital for a second opinion and additional testing to rule out other possible causes of this numbness. Nary a test was done; the neurologist looked at the electromyography done by a neuromuscular doctor at another facility, and he just agreed with the diagnosis.
The diagnosis of ALS is made after a thorough examination and history review. Electrodiagnostic studies, like an EMG or a nerve conduction test, can help support the diagnosis, but they do not make the diagnosis themselves. The nerve conduction study is normal for ALS, while the EMG shows the nerves that are not connecting to the muscles. Other diseases of the muscles and muscle nerves should be considered.
However, none of the other possibilities you mention is likely to be confused for ALS by an experienced neurologist who does a complete exam. For all these reasons, and because you need to be sure of your condition, I would get another opinion from a neurologist who doesn’t rely on someone else’s history review and exam.
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