'I was raised with the expectation that periods hurt and you just kind of have to grin and bear it. So I felt like I had to be stoic about it.'
and other people with a uterus in the United States, endometriosis occurs when a substance similar to the endometrium is found in other parts of the abdominal cavity. This tissue responds to the hormones that trigger menstruation, also bleeding and attempting to shed each month. The result is pain, inflammation, and the formation of nodules, cysts, and scar tissue.
To get officially diagnosed, you have to undergo a surgical procedure that identifies the endometriosis lesions. Which means that you have to convince your doctor that your symptoms are not just “killer cramps,” a task that proves all but impossible for many women. In the United States, on average, it takesbetween the time the symptoms begin — which, for 60% of patients, is before age twenty —and getting a diagnosis.
Her mom’s response confirmed that sense. “I’d tell my mom, ‘When I feel this pain, I want to die.’ And she’d say, ‘Well, periods are supposed to hurt.’ She’d say, ‘When I was your age, I’d have really terrible periods.’ She kind of thought it was normal for me to be going through the same thing.” This, too, is common.
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