'TRANSFORMATIONAL': Ontario cystic fibrosis patients six and older now approved to use life-saving drug

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'TRANSFORMATIONAL': Ontario cystic fibrosis patients six and older now approved to use life-saving drug
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Trikafta is not a cure — cystic fibrosis has no known cure — but it dramatically lessens the disease’s severity and slows its progression.

Eight months ago, simply the thought of climbing a staircase without retching and throwing up seemed impossibly far-fetched for the now-24-year-old Stittsville resident and cystic fibrosis patient, never mind becoming a schoolteacher, running a marathon or any of the other notions that might get into the head of a young woman with her whole life stretched in front of her.

The drug is not a cure — cystic fibrosis has no known cure — but it dramatically lessens the disease’s severity and slows its progression. “Being able to start children at the age of six is going to mean a very different reality for them than the people who are currently living with cystic fibrosis.” In 2020, a study conducted by researchers from Dalhousie University, the Hospital for Sick Children and St Michael’s Hospital concluded widespread access to Trikafta would result in numerous health benefits, including an increase in the estimated median age of survival for a child born with CF by 9.2 years, a 60-per-cent drop in the number of people living with severe lung disease and 15 per cent fewer CF-related deaths.

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