Opinion: 'The wellness of clinicians — the autonomy and latitude of practice that protect against moral injury — has a profound impact on everyone around them, and changes are essential to improving health care for all of us.' commonhealth
He was not yet 50, but during one desperate winter night in a small hospital’s intensive care unit, I held his hand as, in staccato bursts between gasps of breath, he planned his funeral, grieved for the future he would not see with our two young boys, and implored me to remarry.We had been fighting that hulking machine for two months. My husband’s well-managed heart condition, which he was born with, deteriorated gradually at first. In the summer it was an annoying flutter.
But the following morning, when I asked what the next steps of the plan were if the current approach did not work, I was met with defensiveness. As the clinicians rotated in and out of our lives over the course of a long weekend, as interchangeable cogs in the hospital machinery, their faces changed but the withdrawn hostility was surprisingly consistent.
They scanned the electronic medical record, but with each passing day, and each slip in his status, that data drew an increasingly distorted picture, suggesting someone who was chronically ill and low functioning. As the lens became more astigmatic, the urgency to fully correct his condition faded."Good enough" became a real goal.
From the moment we arrived at the second hospital, the experience was dramatically different.
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