As experts probe the connection to an often\u002Doverlooked chronic illness called ME/CFS, patients new and old urge people to recognize how life\u002Daltering it can be.
. But the different doctors she consulted could provide few answers beyond that. Often, she was told her symptoms were likely anxiety-related. Or, as she says, “that it was all in my head.”
Once known as chronic fatigue syndrome, myalgic encephalomyelitis has long been poorly understood, overlooked and often stigmatized. Prud’homme says the best way she’s managed to get people to understand what living with ME/CFS is like is through comparisons. To people who’ve suffered through ME/CFS, there was apparent overlap. For one, there was a connection with a viral infection. But then also the symptoms: people reported extreme fatigue, brain fog and sensory disturbances. Crucially, they were also crashing after trying to exercise their way through their symptoms — often on recommendation from their doctors.Article content
“Now we see all these long COVID patients that will end up developing ME/CFS,” Prud’homme said. “Had this been addressed 10 years ago, we’d be much more advanced today and better positioned to take care of them.” Moreau is optimistic progress can be made, but also blunt about the magnitude of the challenge ahead.
“We know there is a link, because we have the evidence of the overlap of the clinical symptoms,” Décary said. “But is it exactly the same biological process? That we don’t know yet.”Article content
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