‘She thought it was a prank call.’ During the coronavirus pandemic, navigating the health-care system is extra perilous for those with disabilities

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‘She thought it was a prank call.’ During the coronavirus pandemic, navigating the health-care system is extra perilous for those with disabilities
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If you're suspected of having the coronavirus, you might have to call your hospital before visiting. But what if you have a severe stutter or other speech disability?

Navigating the health-care system is a challenge when you’re sick with COVID-19 — but it can be even harder when you have a disability, says one Lubbock, Texas woman recovering alongside her husband from a coronavirus infection.

My husband is finally fever-free after 14 straight days of a fever. He still has a cough, so that has to resolve before he’ll be released [from quarantine]. He coughs so hard he gags. But he’s definitely better. We feel like we can finally breathe a sigh of relief and feel confident we were part of the [large proportion of COVID-19 patients] who get a mild case. But the term “mild” is relative. There was absolutely nothing mild about it.Jimmy’s symptoms started suddenly Saturday, March 28.

I had absolutely no fever at all the entire time I was sick, but otherwise had the same symptoms as my husband: dry cough, indescribable fatigue, tight chest, heavy feeling in the chest. Jimmy did lose his sense of smell and taste; I never did. Jimmy had a moderate-to-high fever for 14 straight days. It finally broke Saturday.

It was so hard. I dropped him off at the ER front door, then went home. Jimmy had a chest X-ray that was negative for pneumonia and his blood work looked good. The ER physician told my husband he was just real sick with COVID-19. He received a prescription for hydroxychloroquine. My husband texted me and I picked him up a couple hours later. But the ER wrote him out a script — how the hell were we to take it to a pharmacy? Hello! We both have COVID-19.

But this was different. I was so afraid of Jimmy’s condition with COVID-19 getting worse suddenly. That’s why I called the ER. I was afraid he had pneumonia. Although the receptionist was kind, having her think it was a prank call was infuriating. We were being responsible and calling the ER instead of just showing up. We both had COVID-19 and didn’t want to expose anyone.

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