'I am fighting for my daughter.' How one Regina family is looking to the community to help raise money for a potentially live saving trip to the United States.
Scarlett Hicks was diagnosed with the NLPR5 gene and an extremely rare metabolic condition called BRAT 1, which generally comes with a terminal diagnosis. Scarlett Hicks is described as a happy, cheerful and playful three-year-old girl. But every day she fights for her life.
It’s a mutation her mother, Jas Hicks, discovered was terminal by doing research online instead of hearing it from doctors when Scarlett was diagnosed. “There were many nights where she would be sleeping and the seizure camera would be on her and I’d be watching the seizure camera and I’d just be crying while she was sleeping because that was the only time I could cry,” Hicks explained.Scarlett’s family say they were denied financial help from the Saskatchewan Ministry of Health when they were forced to go to Toronto for treatment.
“It’s honestly the cutest thing ever the way they play together,” Hoffman said. “After all the diagnosis’ and everything it’s just kind of been like ‘no we don’t want to see Scarlett go.’ She’s part of our family now. We’re going to do what we can to try and raise this money.”
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