One Saskatchewan family is in desperate need of help for their daughter, Emilie Samson, who has tumours on her brain and spine.
Emilie’s last resort is a medication that costs $23,000 a month and will take at least three months to see improvement.
Her parents, Noel and Michelle Samson, insisted on a CT scan that showed one of their worst fears — inoperable tumours.“When she was diagnosed with this, she basically looked at us and I said, ‘How are you and mom going to deal with this?’ Like that she’s more worried about us … than herself,” said Noel.Because of these, she lost some of her vision and is currently using a walker to help with her mobility.
Her last hope is a medication called Belzutifan which is most often used for people with Von Hillel-Landau syndrome, which Emilie doesn’t have but shares the same kind of tumours.The family requested coverage from their insurance and the government for this medication but were denied — which has caused the family great distress.“If it was their kids eyes they were looking into when they’re denying her this this potential life-saving medication, like would they be able to do that.
Saskatchewan Health Tumours Health
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