.VancityReynolds and jillianharris are among those trying to change the toddler's life
. While Kaysen’s family has raised over $300,000 so far, their fundraiser will need to generate a little over nine times that amount by his birthday, in order for the toddler to qualify for the treatment.
“If you want to donate the cost of your hockey ticket to Kaysen this year, we would be so grateful,” Bangel said. “We’d certainly love for him to live past the age of two and go see a hockey game.”The fundraiser was started on short notice because of several barriers. Since Kaysen was diagnosed at eight months of age, his parents have been fighting even to get him access to Zolgensma, which is made by the pharmaceutical company Novartis.
“If you want to donate the cost of your hockey ticket to Kaysen this year, we would be so grateful. We’d certainly love for him to live past the age of two and go see a hockey game.”After significant delays caused by legal deliberation over bringing the drug into Alberta, Kaysen was recently approved for Zolgensma. But now he needs the funds to afford it.ultimate hope is for Alberta’s government
Kaysen is currently on another drug, Spinraza. It costs his family annually $375,000 for four operating room visits. However, Spinraza only prolongs his life and it will only get more traumatic to receive the injections as he gets older, Bernadin said. Getting Zolgensma once will cost significantly less over his lifetime, and it will give him the chance to grow up.
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