Families can claim up to $22,000, but it’s not enough
B.C. children with complex needs in are facing significant challenges in obtaining the funding and support they can receive.
“They give you $22,000 a year,” said Victoria’s Peter Clark, who has a son with autism. “I think I went at least $6,000 over.” “Hiring private support is probably between $25 and $35 an hour, which is what we pay for that type of specialized support,” said Levae. Most parents of typical kids will understand the challenging experience of obtaining a spot for their kid in childcare. However, an extra layer of complexity exists for families raising medically complex children when the family needs to obtain Supported Child Development funding.
Lenahan is not a natural-born advocate but was forced to act after she had her son Cole and the challenge of trying to get help. A support worker was assigned to look after Ronin but decided to leave the position after a few days, according to Cianflone. Taylor’s son remained on the waitlist for almost two years with no movement. Meanwhile, she would make phone calls to MCFD to find out if there had been any progress in getting support.
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