On TikTok, the hashtag 'dementia' has 3 billion views. Caregivers of people with Alzheimer's and other dementias have been using the site to swap tips and share the burdens of life with dementia.
."And so the most common way of supporting persons with dementia is the daughter."
Because there's no cure for Alzheimer's or dementia, the medical community often treats dementia the way previous generations of practitioners treated cancer — like"a big black box," Snow says. Decades ago, when people got cancer,"we didn't say anything, we didn't talk about it. We said, 'Oh gosh, that's horrible.' And people were like, '...
All too often, however, caregivers are left to muddle through and figure out the complex tasks of keeping a patient safe. 'That's pretty lonely," Snow says."And that's so common. And at this point in time, if we had five families dealing with dementia, four out of five would fall apart before the disease was ended. And so that person who's just chosen to be the primary [caregiver], they're all alone. They're truly all alone.
Using TikTok feels like being submerged in an infinite torrent of videos — most about a minute long. But the short video format has attracted caregivers, who find they can document and share the vivid, daily moments of their homebound worlds in ways that would be less visceral on more text- or photo-centric platforms.
The video then cuts to after the bath is over: Hindmon is dressed again, and mother and daughter are celebrating with a dance party in the bathroom. It was then that Revere realized she was no longer so alone. All the burdens of caregiving — the house maintenance, the medical bills and insurance paperwork — were still very real. But she knew others were out there, struggling with the same chores and challenges. It was because of her TikTok channel, and the community it was helping her tap into. Revere posted a follow up right away:
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