New Brunswick has made significant strides in addressing the challenges faced by individuals with rare diseases. A $32-million agreement with the federal government will enhance access to vital medications for these patients. Federal Health Minister Mark Holland emphasized the prevalence of rare diseases, stating that one in 12 Canadians live with such conditions. The cost of treatment for these diseases often proves prohibitive, leading to limited options for many. New Brunswick Health Minister John Dornan, an endocrinologist, highlighted the complexities and high costs associated with treating rare diseases, often stemming from limited research and specialized medication.
Federal Health Minister Mark Holland, right, speaks during a press conference as New Brunswick Health Minister John Dornan looks on at the Stan Cassidy Centre for Rehabilitation, in Fredericton on Jan. 15. New Brunswick has signed a $32-million agreement with the federal government to improve access to selected drugs for rare diseases. Federal Health Minister Mark Holland says one in 12 Canadians is diagnosed with a rare disease, and the cost of treatment for most of these is unaffordable.
New Brunswick Health Minister John Dornan welcomed the funding, saying that as an endocrinologist he has seen patients with rare diseases whose treatment options are limited because of the complexity of the ailment, limited research and the cost of drugs. He says the funding agreement will see New Brunswick receive $10.8-million per year for the next three years to improve access to new and existing drugs, and to improve screening and diagnostics for rare diseases. The funding announced today will cover the cost of three drugs for rare cancers and a drug to treat a rare kidney disease. Dornan says the four ailments were chosen over others because they “had to start somewhere,” and the medications for these diseases are expensive
RARE DISEASES DRUG ACCESS FEDERAL FUNDING NEW BRUNSWICK HEALTH MINISTER
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