Van Bernard, 17, says when he was born, little was known or could be done about his diagnosis. His mother says screening could help other families avoid the anxiety they felt.
Van Bernard , 17, who lives with Type 2 spinal muscular atrophy , says new screening for newborns at the IWK hospital will make a big difference for families., and has become an advocate for the rare condition, says new screening at the IWK hospital will make a big difference for families.“Back then, which was 17 years ago, there was no treatment or any cure like medicines,” he said.
IWK Health Centre, the children’s hospital for the Atlantic region, announced that it will begin taking blood samples from newborns beginning next week to screen for spinal muscular atrophy in Nova Scotia, New Brunswick and Prince Edward Island.Bernard and his mother recall how his SMA was undetected for 10 months after he was born — which was a difficult experience for his family.
Spinal Muscular Atrophy Van Bernard Health
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