When the standard treatment failed to shrink her brain tumour, Khola's husband embarked on a full-fledged campaign to help his wife gain access to an experimental new therapy — via healthing_ca Glioblastoma Immunotherapy healthing GBMDay GBM
Glioblastoma is the most aggressive malignant primary brain tumour and typically affects four out of every 100,000 Canadians.“From November until April, it was a full-fledged campaign to help my wife gain access to immunotherapy,” says Faizan. “We were successful only after her doctor presented additional evidence and we had an advocacy group attached to us.”
The cutting-edge treatment has been shown to be effective against several types of cancer, but more research is needed to determine how it may best benefit glioblastoma patients. Nassiri says that surgery, chemotherapy and radiation remain the standard of care for the disease, and that immunotherapy isn’t used as a stand-alone measure as glioblastoma tumours holds few immune system cell.
“Young adults are preparing to launch themselves into the world, and this group is very much ignored when it comes to the cancer diagnosis,” says Faizan.of cancer patients aged 25 to 64 have no form of drug coverage, and individuals in this position have no choice but to lobby the government or apply for compassionate programs offered by pharma companies. The same scenario applies to accessing experimental drugs or treatment.
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