‘I hate COVID-19’: Kids with disabilities struggle to adjust as schools close

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‘I hate COVID-19’: Kids with disabilities struggle to adjust as schools close
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Advocates, educators and parents say that kids with disabilities are particularly vulnerable as schools shut down to slow the spread of the coronavirus and turn to remote learning.

So far, Van Brusselen says she’s been pretty much on her own.

Meanwhile, she tried to put aside the nagging fears about Iolani’s physical well being. Her health is fragile, and up until three-and-a-half years ago she had seizures nearly every day. With the health system overwhelmed, Van Brusselen worries about what might happen if the shunt in Iolani’s brain that manages her hydrocephalus were to stop working and she had to be rushed to the hospital. “Please don’t let this be the moment that something happens to her shunt,” Van Brusselen said.

On day 11, March 24, Van Brusselen received a stream of emails from Iolani’s teachers and therapists. They were checking in, not offering services, but it was still nice to hear from them, Van Brusselen said. Still, she wondered how her daughter would be able to keep up with lessons, especially if she couldn’t sit by her all the time. She also worried about what sort of services the seventh grader would receive for her speech and vision impairments. “I’m stressed about how much of anything will be possible,” Rice said.Kimber Rice

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