How to return to normal after having your bladder surgically removed
, or substance use disorder, after radical cystectomy. In particular, “there’s quite a bit of depression early on,” says Dr. Bruce Kava, professor of urology at the University of Miami.
For those who continue to struggle with their mental health, patient support groups, WOC nurses, and counseling can all play an important role. In fact, Beckett was recently chatting with another radical cystectomy patient through BCAN’s Survivor to Survivor program, talking through his body image struggles. Sometimes, informal peer counseling can help people adjust, but Beckett ultimately advised him to seek professional help.
Months after her operation, Florida resident Nikki Saltzburg, 48, is still trying to figure out how her stoma works. Every time she changes her urostomy bag, she carries a toolbox of materials into the bathroom: an anti-adhesive aerosol to remove the old pouch, a stencil and pair of scissors to cut a hole in the new pouch, a sticky paste to attach the pouch to her stoma, and a handheld fan to dry her skin.
It takes on average three months, Walker says, for patients to become comfortable with urinating in a new way. Beckett has been living with urostomy for almost a decade now, and initially, he used to have accidents three to four times a month. Now, he can go six weeks without one. For him, the difference was finding the right device system that works for his body. “It stays on, it doesn’t leak, and it’s lightweight,” Beckett says.
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