‘We Are In Crisis.’ COVID-19 Exacerbates Problems for People With Disabilities
Hokkaido, Japan, locked down early and contained the outbreak. When the governor lifted restrictions, a second wave hit even harder
For now, Kaplan has been switched to a traditional home care model, which means she rotates through a series of temporary assistants who don’t have experience caring for her. It’s not an ideal situation, but Kaplan worries that if officials determine the aides cannot meet her needs, they could recommend she move to a nursing home, an outcome Kaplan has experienced before and says is “terrifying.”
While staying home is hard for her son, Haaland says she wants to avoid going to the hospital at all costs, especially because Connecticut’s current no-visitors guidance for hospitals does not have an explicit exception for people with disabilities who live at home. “That would just be horrific for both of us,” Haaland says. When Chris has gone to the hospital in the past, Haaland is the one who communicates with doctors because he cannot speak or follow their instructions.
Even with this background, she is scared of going to a hospital in Detroit during the COVID-19 pandemic because she expects to be treated poorly. Several years ago, Gibson had broken out in hives due to a food allergy, and gone to the emergency room. But the staff, she says, assumed she had been taking drugs, so she had to fight to get seen before she passed out. “I don’t trust going in any of these facilities, but I can’t let that end my life,” she says.
The Disability Justice Culture Club in Oakland, California has launched a mutual aid network and is hosting workshops on self-advocacy, while Disabled American Veterans is helping people apply for benefits online, holding virtual job fairs, and has set up a disaster relief program to provide disabled veterans with small grants of about $250 to help cover immediate expenses like rent and groceries.
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