Two-month-old Matilde was diagnosed with type 1 spinal muscular atrophy, a neurodegenerative disease that causes most children to die within the first few years of life.
The family of a seriously sick two-month-old baby say they can now afford to help her after people united to donate more than $2 million dollars to help them buy"the most expensive drug in the world."
But a new drug gives hope that Matilde might live. On May 24 the U.S. Food and Drug Administration approved a new gene therapy from Novartis called Zolgensma. The only problem—it's priced at $2.1 million. Two-month-old Matilde was diagnosed with type 1 spinal muscular atrophy. On Tuesday her parents confirmed they had raised enough money to pay for her to receive 'miracle drug' Zolgensma.The parents announced on Tuesday that they had managed to not just reach but exceed heir target, having raised $2.3 million in just two months.
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