Moses Latigo Odida reads with his four-year-old daughter, Selah, who lives with Down Syndrome.
Researchers are recommending that more race-based data be collected about family caregivers who are Black, Indigenous and newcomers to Canada, after respondents in an online survey reported there aren't enough accessible supports for marginalized caregivers.Moses Latigo Odida reads with his four-year-old daughter Selah. The London, Ont., filmmaker travelled across Canada to document the experiences of Black caregivers for his eight-part mini-series, Down: Canada's Black Caregivers.
Sixty-eight per cent of respondents reported increased difficulties in accessing essential support services for their loved ones, and 39 per cent said they experienced discrimination from health-care professionals, compared to 22 per cent of their non-diverse counterparts.
It defined family caregivers as "someone who provides unpaid long-term or episodic assistance to a family member, friend or loved one experiencing a long-term, significant physical or mental health condition, a physical or intellectual disability or problems related to aging." "There's an invisibility of family caregivers, so there's this care without the caregiver aspect in Canadian organizations and health-care teams, said Reemal Shahbaz, a PhD candidate at the University of Toronto and the paper's author.
"I have really seen some of the struggles that are associated with being somebody from a low-income family, being an immigrant and a visible minority, and how that affects myself and my mother as caregivers."Collecting data about the joys and challenges of racialized caregivers is a good step forward, said London, Ont., filmmaker Moses Latigo Odida.
"Caregiving is often an unseen and undervalued labour of love," said Fenc. "These findings highlight the unique barriers marginalized caregivers face and emphasize the urgent need for better support"
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