Greyson Parisien’s time on earth was short. But the boy with dark-rimmed eyeglasses who was enchanted by the music in “Frozen,” the sound of ripping paper and his dad playing the guitar is having an outsized impact on his tribal community in the far reaches of North Dakota.
Greyson had surgery at 5 months to correct a heart defect, then he needed an external device to pump blood through his small body. A heart transplant allowed him to leave the hospital after a year and return to the Turtle Mountain reservation, headquartered in Belcourt, North Dakota.Greyson’s story and spirit live on in parades, powwows and conversations in the community. Azure promotes organ donation during congenital heart week and with trivia games.
Susan Mau Larson, the chief strategy officer for LifeSource, part of a network of nearly 60 organ procurement organizations, said she hopes other tribes follow suit.Conversations about becoming organ donors or receiving organs from another person can be tough, especially when personal or traditional beliefs don’t align with western medicine.
He talks about tribes’ increasing reliance on western medicine and asks, hypothetically, if members would be prevented from journeying on if they had a pacemaker or an artificial hip. If not, why not donate or receive an organ?
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