Modern disability culture is old enough now that we can easily see significant shifts, from the practices, assumptions, and approaches of the 1960s and ‘70s, to those of disabled people in the second decade of the 21st Century.
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There is a potential downside to these shifts. Disabled people may seem to be less patient, and more demanding than they once were. This is easily spun into harmful narratives about “entitlement.” Disabled people, especially younger disability activists, may be more likely to be portrayed as selfish, whiny, and detached from the reality of their own limitations. This stereotype never really went away anyway.
This swing from a “medical model” to a “social model” of disability was necessary and helpful. But it was also often oversimplified. Eventually, hardened into dogma. For some us, disability couldbe viewed and discussed as a social and political phenomenon. Talking about our actual conditions and admitting that sometimes being disabled is awful became almost taboo in disability culture. It was fine and even praiseworthy talk about hardships stemming from ableist oppression and injustice.
Ableism itself has also been a persistent and corrosive habit throughout the disability community. Few disabled people approve of it, exactly. But there is an undeniable hierarchy in which people with certain physical disabilities are considered better, more capable, and more worthy of the full range of rights than, say, people with intellectual disabilities or those with mental health conditions.
But what we are really seeing are growing pains. The broader, more inclusive definitions of disability, and recognition of the disability community’s profound diversity and inequality are just barely starting. Progress is inadequate so far. But it is real. There are models and leaders to follow.
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